Infusion time

Four days ago it was once again time to go to the hospital for my medication. I’m quite happy to have a medication that only requires me to go there twice a year. It is much easier to schedule other fun things such as traveling when I don’t have a medication I need to take weekly or once a month.

The medication (Mabthera) works well for me and my RA is in remission according to the doctor. I guess I should be happy but considering I have so much pain in particularly my wrists and fingers I don’t feel like my illness is in remission. It feels highly active…

Yesterday I talked with my rheumatologist and was told to take more cortisone pills daily and then we will talk again next week. Normally a higher dose of cortisone works like magic and I feel no issues but even though I’ve taken more pills both yesterday and today my body do not feel good at all. 😦

Some days I just hate this illness and would do anything in order to have it go away.

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My bed during the infusion
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The machine handling the infusion.
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For the first time ever I had the whole room for myself. I actually missed having company… 
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Bus adventure

I’ve not written in quite some time because I’ve not felt good. I’m having major issues with fatigue and it’s gotten so bad that I’m currently on full-time medical leave from work. I always have some level of fatigue due to my rheumatoid arthirits but this is worse than it has ever been. I’m having problems with my concentration and my memory as well as having difficulties with too much noise. Just sitting on the bus or train makes me feel exhausted.

I’m trying to do some daily adventures in order to get out of the house. Yesterday I went to the gym for an appointment with my physiotherapist. Great time as usual and I’m feeling it in both arms and legs today 😉

As we are currently in the high peak of the pollen season I’m trying to limit being outdoors too much so today I decided to go on a bus ride to Ljusterö, which is a island part of the municipality where I leave. The bus ride also includes a trip on a car ferry. I went to the end station, looked around and went back on the bus before it left again (which were 15 minutes). A nice little journey and it kept me out of the house for 3 hours. When I came hope again I had to rest on the couch almost all afternoon. I can’t wait until I’m back to my normal self again but until then I’ll just have to enjoy my small adventures.

Here are some pictures from today…

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The start of the journey – my bus stop
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The car ferry
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Linanäs – the end station
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Linanäs
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Back on the bus again, it was not so crowded at the beginning of the journey 🙂
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Waiting to embark he ferry to take us back to the mainland. 

February challenge

  

A few weeks ago I signed up for a 30 day Paleo challenge which starts tomorrow February 1st. This means I will omit grains, dairy, legumes, suger, and all processed food. 

As many of you know I’ve eaten paleo for quite some time but I’ve never been on a completely strict meal plan before. We did ate 80-90% paleo in the Fall of 2013 and during that time I had less pain in my joints so I thought it was time to go 100% paleo and why not do it together with others! I chose to do it with the help of Under vårt tak which is a Swedish blog I’ve followed for a long time and they also have a huge recipe bank. They provide a complete meal plan for breakfast, lunch and dinner for 30 days. All I need to do is go grocery shopping! Yesterday I prepared for what meals to include during the upcoming week as most often I skip breakfast and I prefer to eat leftovers for lunch rather than prepare a new meal, at least on weekdays. The challenge also focus on water balance, exercise and sleeping/resting.

Today we went grocery shopping for week 1 but I also cleared out our pantry and refrigerator so a few shelves are “paleo friendly”. The other shelves are a no-no for the next 30 days!   

  

If you want to see my journey over the next month I suggest you follow me on Instagram! 😊

Reflections of 2015

2015 is about to end and I realise I’ve been extremely bad when it comes to writing in my blog. I’m exceptionally good at posting Instagram pictures though! 🙂 Yesterday I used a feature where I could find my 9 most liked posts of 2015, as well as get a little history of total likes for the year and how many images I’ve posted. I guess there is no surprise that all 9 images are of food and that 7 of 9 contains eggs. 😉

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2015 has been a great year… we’ve travelled to Amsterdam, Prague and Nerja (Spain), I’ve turned 40 and enjoyed fantastic celebrations from family and friends and most importantly I’ve worked quite hard in the gym to strengthen my joints throughout the Fall together with a trainer. I promised myself before 2015 that I would focus on healthy food and exercise during 2015 and that has gone well without to many obstacles. I’m really proud of myself for going to the gym after a long day at work despite fatigue and joint pain.

As far as my work life goes I’m still working in the “train factory” and liking it a lot. I’ve taken on more responsibilities during the past year and have grown and feel more comfortable in my new role. I’ve worked almost 8 years as a configuration manager now but have really never thought of myself as “senior”. I’m quite eager to fill in these new shoes and see what will happen during 2016 and how much more I can grown. For several years now I’ve kept a mindmap of what I want to learn and what goals I have and I’m happy that I’ve been able to cross many of them off during the year. I’ve also added a few new exciting challenges to the list.

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The not so fun part of 2015 is how it ends (and unfortunately how 2016 will start). Okay maybe I’m too dramatic now but I’m not feeling good in my hip and for the past month I’ve had to take it easy with my exercises and for the past 2 weeks I’ve not been able to go to the gym at all. I have to admit that I do miss going to the gym! 😉 After my cortisone shot in the hip in the beginning of December I was really hopeful in getting back on track again, but the cortisone shot has not helped and I’m in pain more or less all the time and the painkillers rarely work. I have a hard time sitting, standing and laying down. I sleep quite bad and wake up around 4-5 am and it’s impossible to go back to sleep due to the pain. Obviously I’m so tired later in the day that I usually crash on the sofa and sleep for a bit. I’m not good when it comes to setting still and not do anything as that is when all the exciting things I can do pops up in my head. 😦 Oh well, soon I will be able to get a new cortisone shot and I’m also scheduled for a talk with my doctor in two weeks and I hope he gives me a go for a new IV session. I definitely think it is time again…

I wish everyone a Happy New 2016 and I hope I will be better when it comes to writing in my blog. 🙂

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A Wise Tooth

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My vacation has come to an end and has been substituted with sickness. Our last morning in Prague (I will post about that later) I woke up with a pain on the left side of my mouth where I have a wisdom tooth on it’s way up. I took a painkiller and thought all was good… Well, how wrong was I!! The next 24 hours just got worse and worse and Friday morning I woke up and could barely open my mouth plus that it was impossible to chew. My left side of the mouth had swollen up so badly it looked like I had a tennis ball in my mouth. On top of that I had a severe pain which the painkillers barely helped. My husband called a dentist for an emergency appointment and a few hours later I left the dentist office with a prescription for penicillin due to a mouth infection cased by the wisdom tooth.

It’s been 6 days now since I started with the medication and although the swelling is gone and I can actually enjoy regular food instead of mashed banana, soup and ice cream, I’m still experiencing pain. I don’t need to take painkillers as often as before, but I’m still not able to do much and I just feel like yuck. I thought I was used to having pain, but yikes this is something else than my joint pain! It’s amazing that a little tooth can cause all these issues… but I guess I should consider myself lucky because I’ve not had many issues with my teeth during my lifetime. I’m quite thankful though that they wisdom tooth decided to not give me too much issues until we had come back to Sweden and was at the end of our 3 week vacation!

Healthy drink

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Golden milk and turmeric paste

 

For the past five evenings I’ve ended my day with golden milk (also called turmeric milk). This drink is anti inflammatory and helps the immune system, aching joints etc. I thought I would give it a go!

So far I’ve only noticed that I sleep better but anything that will help my well-being and not make it so easy to become sick I must try. If this also helps to further elimit my joint pain (omitting lactose and gluten/grain has been quite noticeable) I’ll be forever grateful.

I’ve made a turmeric paste which I keep in the refrigerator and take a small amount every night and mix with milk and coconut oil and honey (i’ve sometimes omitted this though). It taste extremely yummy! Perfect way to end a day! So far I’ve only tried it with regular cow milk but I’m planning to try almond milk as well so I can drink this and be completely dairy free.

This is the recipe for the turmeric paste I used:

0,5 dL ground turmeric
0,5 dL freshly grated ginger
1 tsp ground black pepper
2 dL water

Mix and boil on medium heat until it becomes a paste. Stir repeatedly while cooking. Put in a small glas bowl and store in the refrigerator.

Recipe for golden milk:

Heat 2 dL of milk of your choice.
Add 1 tsp turmeric paste, 1 tsp coconut oil and 1 tsp honey.

Enjoy!

Crappy immune system

I’m still sick…. it’s been going on for two weeks now and I just feel like crap! Even crappier is that I met the doctor again today and he put me on another two weeks of sick leave. Oh I so hope I get well way before that! 

If that wasn’t enough of crappy things we’ve also had to cancel our long awaited 2 weeks vacation to Gran Canaria. I should have been enjoying nice warm weather and our own private pool right now! Instead I’m spending my days in the sofa either sleeping, resting or watching Netflix. I’m a little nostalgic and enjoying “Friends”. I’m on the last episodes of season 5 right now…

So what is wrong with me you might wonder?! Well it’s not a regular cold after all… and neither the flu… a not so nice bacteria called “moraxella catharalis” have decided that my body is a perfect place to have some fun! 😞 I started with antibiotics last week and yes it has helped but I’m far from healthy still.

I seriously hate–yes that is a strong word but in this case oh so true–that my RA causes my immune system to be open for infections. It’s so easy for the silliest of bacillus to enjoy my body. 😢