Creepy appointment

During my last visit with the ophthalmologist he wanted me to call and get an appointment with my rheumatologist in order to try to figure out my eye issues and that no matter what the episcleritis always comes back. I’ve had it off and on (okay mostly on) for the past 6 months now and I’m really worried about my eye and my health in general. I’ve had lots of hurting joints lately plus the extreme tiredness and I just want all the issues to “end”.  Obviously I realize that we currently are in the middle of the season when I always feels worse.

Whenever I meet with my rheumatologist I always have high hopes for them to help me and most often they do. Well, this time I’m feeling totally ignored, helpless and to be honest a little depressed.

First off, my regular rheumatologist is off duty for I don’t know how long (and neither do the hospital) so I got an appointment with a doctor I’ve never met before. The bottom line of the appointment was that there is nothing wrong with my joints, all the blood work looks good and that I have pain is just what happens with the disease. He can’t do anything about it, “just take the painkillers” was his answer. He also seemed to claim that it’s only swollen joints that signals an active disease. Is that really so? When I tried to argue about it he wouldn’t answer in any other way. For some reason though he decided to put me on a higher daily dosage of the cortisone pills. Seriously!? I’ve just managed to lower that dosage so I’m not totally happy about taking more again but obviously I will comply with his decision.

As far as my eye issues goes he didn’t want to help out at first, that was not his expertise and if the ophthalmologist really wants help and discuss medications they could talk over the phone. He did agree though that the eye issues most likely are related to my RA. When I mentioned that I only have one eye which works he seemed to change his heart a tiny bit as he suddenly said he would talk with the other rheumatologists at their “therapy meeting” as he called it where they talked about some of their patients. He said he didn’t think anyone else would think that a medication change in regards to my biological meds would be helpful and that he would call me if any of them thought otherwise.

I did get an cortisone shot in my hip though which has been bothering me for a while so today I’ve been resting all day long. I had planned to be home from work anyway today as I still had a little bit of headache left after yesterday’s migraine attack. It was the first time I got an cortisone shot in the hip and my only conclusion is that it has to be the worst place so far in regards to not being able to relax or rest in any comfortable position, doesn’t matter if I’m laying down, sitting or standing, everything hurts too bad. At least now the hip should be better within a few days so I’ll suffer through the uncomfortableness of it all.

Oh and the creepy part of the appointment you might wonder? Well… for most of the appointment he was looking at my chest more than my eyes. I’m so going to complain to the hospital about that and I refuse to meet him ever again. At my next appointment in 3 months I’m going to request another doctor if my regular rheumatologist isn’t back.

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2 thoughts on “Creepy appointment

  1. Donna March 6, 2014 / 17:52

    Cecilia – I am so sorry you experienced these problems with your appointment. I understand the feelings of frustration when you hope and expect for help from a doctor and what you receive is disappointing. I think you described it very well with “helpless.” This endless maze of trying to manage our own healthcare can be overwhelming, especially when you feel so bad. You’re in my thoughts and prayers to feel better and with much less pain. And I hope the issue with the rheumatologist is resolved soon. At least your ophthalmologist is involved. Feel better !

    • Cecilia March 10, 2014 / 21:07

      Thanks Donna! My hip is starting to get better thankfully just an occasional pain now, but the higher dosage of cortisone I’ve not felt it has done it’s magic. I’ll continue though if for some reason it does help my eye issues. I’m going to the warm and sunny Canary Island next week so I’m hoping it will do my joints some good! 🙂

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