I started lowering my cortisone dose last Friday and since then I’ve had stiffness of my joints every morning, more pain as well as being exceptionally tired. The tiredness is the worse part as there is nothing that really help for that. I try to catch up by sleeping a little more but I don’t think the tiredness will go away until my body realizes it has to start produce (more) of the cortisone on its own. I’m just hoping that happens quite some time before its time to lower the dosage again. I had some thoughts of lowering another 1/4 pill next week but now I’m not so sure! I’ll just take one day at a time and see how it goes.
One good thing with my RA is that I’ve found a new friend, Vivi, through a Swedish rheumatism Facebook group. We decided to create our own luxury kits and fill it with nice things–candles, wheat bags etc–that will cheer us up when we have a really bad day. We also decided to send each other some small gifts to put in our luxury kit and open a gift on a bad day. Today I picked up my package and have now put the gifts in my box. My box looks like a huge book.
I’m hoping it will take some time until I need to open my luxury kit but at the same time I’m very curious about my gifts! And imagine how hard it will be to decide which gift to open!! I suppose the best solution is to close the eyes and just pick one! 🙂